Thank you for a very moving and informative website. My father is diagnosed with MSA and is in the hospital with riley tubes (for food) and oxygen to assist breathing. He had a mild stroke in 2008 and has deteriorated rapidly since then. My mother is his carer and it is sad to see what their life has turned out to be. Once a gregarious and enthusiastic person, my dad is reduced to such a state where he is unable to communicate the minutest of wishes. It is indeed a brutal disease to be diagnosed with.
We, as a family, are hoping that he is relieved of the distress he is under.