My husband has been dx with msa by his cardiologist based primarily on low and erratic blood pressure. There are other parkinsonian symptoms, and he has an apt with neurologist in a week. I have been reading about it online, but not until I read your blog did it become real.
And terrifying. What a horrible way to live/die. Most importantly, though, it made me realize we need to make plans and do some serious thinking, if this dx is confirmed. Thank you so much for your efforts to help others.
Martha, and anyone this info may help,
Baden was diagnosed 7 years ago. We managed very well until feb when he was diagnosed with lung tumor.
As for the dropping BP you may like to try a salt sole. It is simply water saturated with Himalayan pink salt. One teaspoon in a glass of water in the morning. Baden’s BP has been stable for quite some time now. It is simple to take, won’t do any harm and may help so worth a try. The pills from GP did nothing.
Just google salt sole. Good luck.