I recently lost my 63 year old sister to MSA. Such a cruel disease. She was diagnosed 5 years ago with Parkinsons but medication did nothing to help her. She had to wear a head band attached to the back of the chair to hold her head up. Very degrading. She was placed in a nursing home a few months ago because the carers couldn’t even lift her to the shower. She deteriorated rapidly in the nursing home and it was like she was trapped in her own body with limited movement if any. I tell myself she is in a better place now with no more pain. I just wish there was some better treatment available for sufferers.