Once Patricia was “correctly” diagnosed, her Neurologist said that the normal prognosis was a duration of between 7 and 12 years. The problem was – working out when it started. We settled on a date when we thought we first noticed that something was wrong and Patricia went for about 13 years after that date.

However – if she had not chosen to have a PEG, she would not have survived anywhere near as long as she did. When the staff at Bethlehem Hospital recommended that Patricia stay there permanently rather than go home after a respite care visit, it is my belief that they believed she only had 3 months to live at best. But a combination of a strong heart, an even stronger will and the PEG saw her survive for 15 months before she passed away.

It is very difficult to estimate – the best person to give you any idea is your mother’s Neurologist.