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Hi Marilyn

My heart goes out to you – you really have drawn the shortest of straws. Firstly- I have moved your original post to this page as it is more appropriate. In answer to your question re Bethlehem Hospital – it is in Melbourne, Australia. A quick check of your email address properties tells me that you are in the USA.

There are some excellent support groups in the USA run by wonderful people. Someone there will pick this post up in time but I am taking the liberty of forwarding your post on to a lady called Vera James whose late husband had MSA.

Feel free to continue to post here and ask questions.