I am in Australia but the best person for you to contact is Vera James – her late husband had MSA and she is actively involved in a number of MSA support organisations – lovely lady.

Her toll free number is 1-866-737-5999 ex 202 and you can call and speak with her. She will try to help you with anything she can. I think she might be away for a couple of days so if she is not there when you call , leave a message when it goes to voice mail and she will get back to you as soon as she returns.