My husband has been dx with msa by his cardiologist based primarily on low and erratic blood pressure. There are other parkinsonian symptoms, and he has an apt with neurologist in a week. I have been reading about it online, but not until I read your blog did it become real.
And terrifying. What a horrible way to live/die. Most importantly, though, it made me realize we need to make plans and do some serious thinking, if this dx is confirmed. Thank you so much for your efforts to help others.