I recently lost my Mum, Janet to MSA, 6 years after her diagnosis. I am writing today to thank you for your website. I would often read the comments (clutching at straws for information or ideas to combat the latest hurdle). I found the diary of your time caring for Patricia both moving and informative. It helped my family and I understand what complications Mum was experiencing and also to a degree, what to expect as time went on and the disease took hold. In the past 6 months or so she was unable to move and her speech had become nonexistant.
She was restricted to thickened drinks and soups due to swallowing difficulties. I am thankful to say Mum passed unexpectedly but peacefully on a Sunday afternoon.
Once again, thank you for taking the time to share your story, I know it is making a difference to the lives of many people touched by this disease. Regards, Leanne